Tag: Autism

Society has dimmed my shine

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I wanted to share with you what it’s like being autistic and also suffering with body dysmorphia

I hate my eyes but I’m not talking about the color. I’m talking the absence of sparkle. That sparkle was stolen by society that keeps telling me how I see the world is wrong.

I hate my smile because it’s a reminder of having to mask my happy flappy hands because society prefers quiet hands.

I hate the way I walk because society says it’s not “sexy” enough. I’m very clumsy and bump into things because I lack body awareness and I have poor posture.

I hate my body because society made me feel like my hanging belly, stretch marks and sagging breasts is ugly. I look in the mirror and pick apart everything and I cry because I’m disgusted.

I’ve spent all my life internalizing everything society sees as a flaw. But thinking about it on a deeper level, I now recognize that I actually don’t hate myself. I hate the person that I have become to protect who I really am. I hate that I’ve chosen to put myself down because it’s easier to tolerate hate from myself than to cry about the rest of the world hating me. I hate that I’ve had to mask a lot of my autistic traits so that I was protected from abuse. My fatal flaw is perfecting everything I do so the world has less of a reason to bully me.

As part of my self healing journey, I’m trying to find myself again and take back that power to love myself no matter what people think or how people feel about me.

Let those happy hands flap

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I was 4 years old when I first learned that my happy flappy hands were “inappropriate”. I was in class and the teacher said it was snack time and I happily flapped my hands and giggled. She placed her hands on my hands and set them down on my lap and whispered “that’s not how we act”.

I didn’t have verbal speech fully mastered yet but I did speak loud and clear with my body. I would bite others when I didn’t want to be touched, I would bang my head when I was overstimulated and I would flap my hands when I was happy. But I still don’t understand why it was so wrong for me to express my happy emotions. Why do I have to suppress my happy stims? Why does it make others so uncomfortable to see me happy? Why isn’t the world more accepting of different forms of expression? I hear professionals pushing the “quiet hands” nonsense and I get sick to my stomach.

As an autistic adult who took all my life to learn to embrace my autism, after spending most of my life having people tell me the way I function is wrong, I want to be the one to tell the next generation of autistic children that it’s ok to flap your hands. It’s ok to be happy and to express it in a way others aren’t used to. It’s ok to flap those hands as much as you want until you feel enough of that happy energy has been released. I understand that regulating emotions is sometimes complicated and even happy emotions are considered BIG emotions. We regulate it the best way we know how and please don’t let the world stop you. Being happy and showing it is not a bad thing. It only means you experience it in a much profound way than anyone else and that’s a very beautiful thing, to be able to feel immense happiness. You don’t need to contain it. It’s a beautiful thing to hand flap happily over the smallest things in life that others take for granted. Happy flappy hands are so pure and beautiful and I hope that someday everyone else can see it the same way I do.

How water helps me

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Underwater video of me jumping in the pool

Being submerged in water has always been one of my favorite things for as long as I can remember. It’s been so beneficial for me in different ways and I wanted to share that with you.

Being submerged in water is a very calming sensory experience for me. It has helped me regulate overstimulation caused by my surroundings. The pressure of being in water makes me feel like the weight of the world has been lifted from me and I can finally relax and breathe. It also helps with my concentration and therefore I do a lot of mental processing while I’m in water because I can process my thoughts more at ease. It’s why I make most of my life decisions in the shower. Water puts out that fire I feel in my brain and calms my overactive nerves. It also brings out the best of me. My hands are flappy happy and I’m giggly when I’m in water.

Drowning is the #1 cause of death in autistic children. I have the advantage of knowing how to swim from a really young age so drowning was always less of a risk for me. I used to elope a lot as a child and I would always go where water was.

Fun fact: I used to swim in the Hudson River!

Autism & Sexual Assault

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Autistic people are 4 times more likely to get sexually assaulted than neurotypical people. I’m autistic and I’m a sexual assault survivor. I don’t blame my autism or myself for what I went through but I do believe it’s important to talk about these things so people can be aware and understand the intersectionality between autism and sexual assault.

What made me more vulnerable to sexual assault is my difficulties with non verbal communication. I have a hard time interpreting body language and facial expressions. I was very trusting and sometimes gullible so it made it easier to manipulate and groom me. I even have difficulties with verbal communication because I don’t really understand hints and subtext when others talk to me. I was also unaware of danger and often unknowingly put myself in risky situations. I sometimes have delayed response to situations due to the way I process information on a certain day. So by the time I realize that there’s red flags, it’s already too late. My processing speed is much slower if I’m already dealing with sensory overload which can be triggered by many things.

I still have a lot of trauma to heal from. I wish I could just snap my fingers and the pain just disappears. I used to see the good in everyone but now I’m hyper vigilant and avoidant. I need to protect myself because there really are disgusting people in this world who target whoever is the most vulnerable. Please stay safe out there!

I love legos

Categories Amazon, Autism, Legos1 Comment on I love legos
This is a picture of me holding a flower bouquet made out of legos. If you want to purchase this same set, click on the link https://amzn.to/3sKkFg9. As an Amazon associate, I earn commissions from qualifying purchases.

Growing up I didn’t have my own Lego set. I do desperately wanted legos but my mom always said she didn’t have the money to buy it. Now as an adult, I treat myself to Lego sets whenever I can afford it because I feel that I owe that to my inner child that’s still healing from trauma.

Our home is loaded with legos. I do have children so they obviously love it. But legos is more than just a toy for me. Whenever I complete a set, my confidence level goes through the roof. As someone who struggles with confidence development, legos is an easy way to help boost that. Legos also helps stimulate my brain and helps me with problem solving. I also love the opportunity to be creative. The instructions that comes with it are visual so I’m able to understand it just fine. It’s the perfect sensory tool for me and very therapeutic. It helps decrease stress levels and sensory overload. It helps me build patience and encourages my need to hyper focus on something I really love. It also helps me build a stronger bond with my children. Legos is one of the few things we can all do together that makes us all happy. Also, since I never received occupational therapy as a child for my needs, playing with legos is the best thing for my physical development because it develops dexterity and strength in the fingers but also teaches me control of the pressure applied when building things with intricate detail. I lack body awareness and I’m often heavy handed. Building with legos has taught me what gentle touch is.

Autism poetry book now available on Amazon| Beautifully Wired by Jessica Jenkins

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This is the moment I’ve been waiting for. I’m so happy to announce that my autism poetry book called “Beautifully Wired” is now available on Amazon. Click here to purchase and let’s see how many copies I can sell in the first month. Thank you to all who have supported me this far!

Seeing the world through my autistic eyes by Jessica Jenkins | Autism Documentary

Categories Autism3 Comments on Seeing the world through my autistic eyes by Jessica Jenkins | Autism Documentary

I’m really excited to announce that my autism documentary is now released. I really was hoping to have it released this morning but it was taking forever to export and upload it.

I’ve worked really hard on this and I really hope that whoever watches it enjoys it and continues to support me and uplift mine and other autistic people’s voices.

The documentary is free access to the public but if you would like to make a donation to help support me, that would be greatly appreciated. The only thing I do ask for is that you share my documentary with your friends and family to help it reach more people. Also, please subscribe to my Youtube channel if you haven’t already.

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Autism & ADHD | What it’s like having both

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I really am excited about this blog post because a lot of people have absolutely no idea what it’s like having 2 different disorders co-occurring. I’ve heard a few people say that autism and ADHD are the same thing. It really upsets me because I know exactly how different both are and how they affect me differently. In this blog, I’m going to explain how both disorders basically contradict each other on a lot of things.

Autism vs ADHD

My autism causes me to be overstimulated and need to shut down but my ADHD causes me to be hyperactive and now I can’t relax enough to restore myself.

My autism insists I need order and routine but my ADHD makes it hard to follow the routine because I get bored and distracted easy.

My autism wants to obsess over a special interest and while my ADHD mostly agrees with that because it makes me hyper fixate on my autistic special interests, I still get distracted and bored easily which makes me unable to stick to one thing for too long. That’s why I have a long list of crafts that I do and continue to add more to the list.

My autism causes me to be sensory avoidant but my ADHD causes me to need constant stimulation so I’m always stuck picking which one will have the least harm done if I ignore it.

My autism makes me not want to be social but my ADHD pushes me to be social because being stuck at home relaxing doesn’t feel good for my ADHD, which then makes my autism very uncomfortable struggling with the lack of social cues.

I need sleep to restore my autistic brain but my ADHD makes me feel restless and now I can’t shut my brain off so I’m up all night with racing thoughts that my autism is unable to process.

My autism wants to organize everything in my space but my ADHD makes it hard to stay focused on a task and both conditions tend to struggle with execution dysfunction.

My autism causes me to have meltdowns due to sensory processing issues while my ADHD doesn’t really care unless it’s distracting me.

My autism does very well focusing on details but my ADHD causes me to easily forget the details and now I need a step by step process broken down.

My autism makes me learn new things pretty quick but my ADHD makes me hyper focus on something else prematurely and now I can’t retain the information I learned.

My autism makes me shut down and occasionally have non verbal episodes when dealing with severe sensory overload but my ADHD makes it hard to shut up sometimes and I talk nonstop.

My ADHD causes me to be impulsive but my autism can’t tolerate unpredictability and now I have to carefully plan it out before it’s executed.

It feels like a constant war in my head between the two. I can’t always accommodate one’s needs without interrupting the other. My depression is amplified due to the confusion and inability to be comforted. I can’t help myself when there’s such confusion.

While there are some similarities between the two, it’s definitely not the same thing and it’s absolutely not the same spectrum. Some people have one or the other but there’s some who deal with both and it’s very complicated. I hope you learned something from this blog because it’s very important to be able to recognize the difference so that you can accommodate your needs accordingly.